Swan Mothers

Discovering Ourselves through Parenting

Full Responsibility Parenting

A Mother’s Lament by ~Yohnnilee Fan Art / Traditional Art / Drawings / Books & Novels©2010-2013 ~Yohnnilee

A few days ago, I wrote some lovely words about not interfering with my children, about letting them have their own experience, about trusting that they can manage their own lives. I clicked post, sending my insights into the world. I felt good about my enlightened parenting. For a minute. Then, life resumed its relentless march.

Ellana came down dressed to go out in tights and a shirt. Daniel got in Jonathon’s face and made silly faces, which caused Johnathon to groan and speak harshly to his brother. YouTube and i-Pad games took precedence over homework, for a long time.

And I . . . interfered.

I used what my daughter once called The Tone of Voice, the same tone of voice which I admonish my children not to use. I offered dozens of suggestions in rapid succession. I pushed and prodded, which, in my Not Interfering post, I implied would build a foundation for resentment. Way to go Swan Mother. Yay, me. <sarcasm>

Knowing What Kind of Mother I Want to Be, Not Being Her

Cover ImageI wrote a book about my journey to recognizing that my children are magnificent exactly as they are. I’ve been a mother for a long time (15 1/2 years). I’ve done lots of things wrong. I’ve read piles of books and blogs. I’ve learned from my mistakes. I have a clear picture of the supportive, gentle, and loving mother I want to be.

So . . .

  • Why do I offer observations and suggestions, when my goal is non-interference?
  • If I love them exactly the way they are, why am I frustrated?
  • Why is my best so flawed?

Total Acceptance

“I have come to drag you out of yourself, and take you in my heart.  

I have come to bring out the beauty you never knew you had and lift you like a prayer to the sky.”

originally, Rumi (now, my family, to me)

We do not live in a bubbles. The moods and actions of people around us affect us. Weather affects us. Moon cycles and solar flares affect us. Childhood experiences and what our spouse said this morning affect us. Humans are complex creatures.

There is no excuse for me to speak unkindly, but I apologize to my children, not here. I do not want my children to apologize to the world for being who and how they are, so I accept myself as I am — even when I don’t like myself or my behavior. I keep doing my work and remembering Carl Rogers’ curious paradox:  When I accept myself just as I am, then I can change.

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A Dark Side of Peer Pal Programs

My son’s school has a program called Peer Pals though which student volunteers work and play with classmates with special needs. Reading the permission slip I was required to sign indicating my consent for my autistic son to participate in Peer Pals, I felt uncomfortable. While I understood how such a program might benefit children, the idea of assigning my child a friend, or friends, felt wrong.

Daniel, then 12 and in sixth grade, was doing well in his first year of middle school. I know he worked longer to complete assignments and homework than his classmates. I know he didn’t understand much of what teachers said in class. I know he didn’t have friends who knocked on our door. At the same time, he was pleased that he had learned to operate his lockers and navigate the hallways within days. He persisted in doing his homework independently. He was happy.

During  fall conferences, his Resource Room teacher told me that there was a friendship developing between Daniel and Brian, a boy who sat at his table in English and Math. Mrs. S was teary describing how the boys talked and laughed together. Daniel told me that he sat with Brian at lunch. The relationship did not extend outside of school, but Daniel never expressed an interest in doing so, and I never suggested it.

To Peer or Not to Peer?

I discussed the the Peer Pals program with Mrs. S. She explained that his Peer Pals would share notes with Daniel if he missed a class, that he would have a Lunch Bunch so he wouldn’t “have to” sit alone in the cafeteria, and that the children would participate in fun activities to facilitate socialization. I decided to sign, but asked Mrs. S ensure that Brian did not become Daniel’s Peer Pal since their friendship was developing naturally.

A few weeks later, I discovered that Brian was Daniel’s assigned Peer Pal. Distraught, I called to ask how this had happened. Turns out the arrangement was a mistake. The social worker who runs the peer program, Mrs. K, had not communicated with Mrs. S prior to seeking peer mentors among the sixth graders.

They asked if I wanted Brian removed as Daniel’s Peer Pal, explaining, “Brian volunteered because he wanted to help Daniel.”

It was too late. I didn’t want Daniel to think Brian didn’t want him to be his pal. I didn’t want Brian to feel that his good deed had been rejected.

Daniel and Brian remained Peer Pals, assigned to each other. I was devastated, disappointed that I’d allowed a potential friendship to be marred.

Full Circle

When Daniel asked, “What’s a Peer Pal?” I explained that a pal is a friend, that Brian had volunteered to help him if he needs help in class because he’s his friend, because Brian wanted to be the one to help if Daniel needed help.

The school year passed. Daniel sat at Brian’s lunch table every day. There was an indoor (due to rain) picnic for the peers in the spring. There was a field trip for The Peers.

Then, in the last week of school, the yearbooks were distributed. Among student groups in the back pages was a group photo titled Peer to Peer Mentors. Daniel saw Brian in the picture and asked, “Why I not in this picture?” tapping on the page with his finger and looking with me with wide-open eyes. He was confused, and sad.

All of the “normal” kids were pictured. You know, the ones who volunteered. The ones who helped the less fortunate. The heroes. What does that make Daniel and the other autistic kids, the ones with Cerebral Palsy and Downs Syndrome, the “other” peer in Peer to Peer?

What Now?

A new school year has started. I expect that the same form will come home in Daniel’s folder, asking my consent for him to participate in the peer mentoring program.

  • If you’ve been in this type of group, please help me understand.
  • Was the group helpful to you?
  • How did you feel about it at the time and in retrospect?
  • Does experience in a facilitated setting translate to other situations?
  • How can parents tell if they are helping and supporting, or imposing their values and goals on their children?

Perspective and Experiences from Autistic Adult Bloggers

Sometimes What Looks Like Empathy, Isn’t

by Lynne Soraya

My new teacher was very extroverted and people-centric – traits that would seem ideal in a teacher. But we quickly came to clash. In her estimation, being alone and isolated were the worst possible outcomes for anyone. I was both.

Not that I wanted to be…but I was coming from a completely different perspective. For me, isolation was a far less painful place than the world in which I had spent the previous year – a world in which it was impossible to tell the cruel from the kind, and being around people meant living in constant fear, wondering where and when the next attack would come. And my teacher unknowingly made it worse – in an attempt to integrate me into the social sphere of the classroom, she “assigned” me a friend. read more

Out of the Goodness of Your Heart

by Judy Endow

I have nothing against the goodness in the hearts of other people. However, I would like to explain how it feels to be on the receiving end when I am befriended out of the goodness of your heart.

First of all this doesn’t a friendship make because authentic friendships are reciprocal. This means that giving and receiving go both ways. The benefits are mutual. When you befriend me out of the goodness of your heart – and then tell me so – I understand that you are assuming the role of a kind benevolent person while I am perceived as a less than person, assumed to not be able to have real friends so will be grateful to you for including me. – See more at: https://ollibean.com/2013/12/10/goodness-heart#sthash.0L1iIM0b.dpuf

 

 

 

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Not Knowing, Not Interfering

When my children return home from school, part of me yearns to ask 20 questions.

  • What did you learn today?
  • What was hard for you? What was easy?
  • Where did you sit at lunch and with whom?
  • Did you feel sad?
  • Do you understand what’s going on in class?

I savor the tidbits they share, because I know that most of their school experiences will remain theirs alone. I glean a bit of information from conversations with grandparents or from  pretend-play.  A few stories  trickle at random throughout the year.  But it is not much.  Even though I would love to hear the details of each success and tribulation, I embrace not knowing. I want to allow my children to have their own experiences and to let them keep these experiences for themselves if they so choose.  I want them to be confident in being themselves.

Getting Out of the Way

As a parent, it is difficult to not intervene constantly.  It is even more difficult for those of us with children for whom navigating Life 101 is  challenging.  When speaking, socializing, and interfacing with the world don’t come naturally, it is tempting to constantly instruct our children in how to speak, look, and act.

Yet few people like to be told what to do.  When parents constantly push, prod, and offer suggestions, are we being helpful, or are we building a foundation for resentment?

Teaching our children to function in this world is one of our vital tasks.  Sometimes, direct instruction is necessary and useful.  Used too frequently, it is unconstructive and potentially damaging.

I believe that the best teaching method is example.  Studies have shown that those children who see their parents read achieve greater reading success than those whose parents read to them.  Seeing parents eat healthy foods leads to better eating in children then lecturing.  Parents who exercise are more likely to have children who are physically fit.

At camp and in school, at tae kwon do and at music lessons, my children thrive without direct instruction from me. They acquire skills and knowledge that I do not have.  They hike trails I never hiked and play instruments I don’t know how to assemble. They are strong, smart, and resourceful. I enjoy seeing their pride in their accomplishments.  I am happy for their growing confidence. I continue to practice practicing non-interference.

In my book, Swan Mothers, Discovering Our True Selves by Parenting Uniquely Magnificent Children you can read my story and those of other parents on conscious parenting journeys. 

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Surrendering to Summer

When my children were young, experienced mothers offered me suggestions for the school to summer transition.

  • “Schedule your doctor and dentist appointments for right after school gets out.  That’s what mothers-in-the-know do.”
  • “Pick up summer bridge books to give your child a head start on the next grade level.”
  • “Sign them up for lots of day camps to keep them busy.”

IMG_6144Memories of Summers Past

I had my own ideas of how summer should look, based on my own idyllic childhood.

  • Running around outside
  • Riding bikes
  • Climbing Trees
  • Swinging
  • Playing in the sand and clay pit
  • Swimming

Surrendering to Schedules

Turns out the summers I remembered were not for babies, toddlers, or children who thrive on routine. My young  children woke early (6:00 a.m. was sleeping in). They were hungry soon after, and needed activities to keep them busy.

I’d venture a one-eyed peek at the clock, knowing I must get out of bed.  I’d hope that they would go back to sleep or allow me to lie on the couch. Eventually, I’d become alert enough to begin our daily program: breakfast, a long walk, a snack, reading, playing on the outdoor gym, lunch, and so on.

The children were happiest when they knew what to expect and one activity flowed smoothly into the next.

Surrendering to Self-Directed Activity

Years later, I was surprised to notice that I did not have a daily schedule and that my children were resisting my attempts at structured activity. After breakfast, they yearned to open the door and just go–wherever they chose.  They returned when hungry.

My main tasks were meal preparation and housekeeping.

Whatever!

The key to enjoying summer with children is willingness to provide children with what they need. Some children feel good with schedules and structure. Others prefer having freedom to do what they want, when they want, without adult intrusions.

What works will probably change year to year – or even day by day.  Our willingness to go with the flow makes summer living easy and fun.

IMG_20110808_111243

If your children need scheduled activities and structure, check out Karen’s post at the Friendship Circle Blog.

14 Tools For Science Exploration In The Summer

 

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Why I Refuse to Worry About My Children’s Future

wor·ry [wur-ee, wuhr-ee]

–verb

to torment oneself with or suffer from disturbing thoughts; fret.

Worry is a useless emotion.

Why should I torment myself and suffer about what may or may not be? Why should I assume the worst possible outcome, when I can find comfort in a joyful scenario?

Bleak Future

I have taken a whiff of the statistics about independent living and employment prospects for autistic adults, but the statistics are meaningless to me. Only 1% of children have an autism diagnosis. We won that lottery, and we can win again. In fact, we win every day. I love my life and am grateful for exactly the children I have. Thanks to autistic self-advocates and allies, the world is changing. Allistic people are working with autistic people and people of various neurologies interact in many places. People are starting to understand that we are all interdependent. We are all valuable.

. . . trying to “fix” today’s world by repairing the system is somewhat of a waste of time. Simply, because the current institutions (politics, economy, education, and healthcare among others) and their mission are the cause of our pending extinction. . .  Our evolution is dependent upon the collapse of our current society with the opportunity of rebuilding a new world based on a sustainable foundation that is in harmony with the planet.

— Bruce Lipton in his August 2010 Newsletter

Anything is Possible

For the past 13 or so years, my children have been actively showing me that things are not what they appear. I wasn’t very quick in paying attention, but eventually, I could ignore them no longer. I began to actively change my beliefs. Even as I establish new ways of seeing and being, I am open to ongoing change.

Where There is Movement, There is Life

If you have ever seen a still pond or a little segment of a stream where the water does not move, you have noticed how life there begins to decay. Even decay is movement and change, and necessary at times. But, if I can choose (and I always choose my own adventure), I choose joyful, active movement.

I choose to be a rushing stream or a shimmering lake, not water covered with green and brown scum.

Autism as Evolution

The world is changing very quickly. Maybe, by the time my children are grown, they will not need language to communicate. Maybe, my own reliance on spoken and written words will hold me back in the next phase of evolution. Or maybe not. I don’t know. I am open to a brilliant future for my children and for myself. Even if I cannot imagine what it will be and how it will come about.

What If I’m Completely Wrong?

What if a good command of language remains necessary? What if flicking and stimming are not accepted or forever viewed as weird? What if Daniel grows up and cannot make life in the world work for him on his own? Then, I will figure out what we need to do.  I will cross that bridge if I come to it.

For now, I support him and guide him to prepare for life as we know it, knowing that great changes are afoot. Worrying and torment do not help him or me.

I will continue to build castles in the sky, and to put foundations under them.

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Doing It My Way: I’m No Mother Warrior

How do you label a child who, before kindergarten, has the vocabulary of a seventh grader but can’t cut with scissors? Where do you put her? How do you teach her? Public school “averaged” gifts and deficits and put Ellana a regular classroom, where she was alternately bored by the basic reading and writing instruction, and frustrated by cut and paste time. By first grade, we realized that even the schools that claimed to work with all of a child’s abilities – including Montessori and Waldorf schools – were doing more harm than good.

At this point, the Warrior Mother would have started scheduling meetings at the public school and engaging advocates and lawyers to ensure that her child gets what she needs. She would have created a gifted program for first graders in her school system, brought in a cut and paste advisor for her child. I was no mother warrior.yoga-2176668__340.jpg

“I won’t put my energy into fighting,” I told my husband.

We took our child out of school and I began homeschooling.A few years later, our second child “graduated” from the amazing autism program where he’d been thriving for three years. He no longer belonged in the specialized autism classroom. He spent his kindergarten year putting in a full day, half of it in a regular classroom (no aide) and half in a room for cognitively impaired kids. That was the best the school would offer, though he is not cognitively impaired. I knew that what worked in kindergarten would not work in first grade. There would be more verbal instructions and more demands for independent work. If I wanted an aide in the classroom for first grade, I’d have to fight for it. I had not developed any warrior skills in those years. I started homeschooling two children.

Our choices worked for me and for my children. Another family, another child might need a Mother Warrior. My children got a different kind of mother, one that works for them.Though I am not nor do I desire to be a Mother Warrior, I have great respect for Mother Warriors. They do what they need to do for their children. I do what I need to do for mine. There is a place for warriors — and a place for peacemakers.

Curbies on Autism

I learned the term “curbie” reading Kim Stagliano’s memoir All I Can Handle:  I’m No Mother Teresa. Kim is the mother of three girls with autism and “a curebie. That’s an autism parent who believes that, in our lifetime, we will be able to bring these kids to point where they blend in with their peers and can live full, independent lives – through a combination of medical treatment, therapy, schooling, and a rosary that stretches from Connecticut to California.” Stagliano adds, “Call it recovery. Call it cure. Call it remission. Call it pasta e fagioli. I don’t give a crap what it’s called… I just want Mia to be able to live a garden-variety, normal live without needing an adult to keep her safe… I want a cure for her, damn right. What kind of parent would I be if I didn’t?”  (p. 19)

The Neurodivergent Camp

I am not a curebie. I excelled at blending in and doing garden-variety my whole life.  When I heard the terms neuroatypical – and later, neurodivergent – I fell in love and embraced the concept with my mind, heart, and soul. The idea that it was okay for my children to be themselves was freeing and exhilarating. (Could this liberating idea mean it was okay for me to be myself too?)

I also strive to keep my children as healthy as possible. I have long-studied nutrition and the natural health sciences. I continue to learn. I continue to provide the best food and living environment that I know for my family. I believe that everything matters.

Many Flavors of Autism, Many Flavors of Mothers

carefree-2280933__340.jpgMy experience of autism is not the same as Kim’s. In one of my favorite passages, she says that autism is like Bertie’s Every Flavor Beans from the Harry Potter books. She points out that some autistics got raspberry cream or root beer flavor. “They can speak eloquently, write blogs, move out on their own…”  “Others with autism, like my three girls, got the ear wax/vomit/dog poop flavor. They need help 24/7 to navigate the world. When I talk about autism, I mean the version that my three girls have.” Obviously, that is simplified, but it makes the point that if you’ve met one autistic person, you’ve met one autistic person.

I hear and understand what Kim wants. Though we use different words, and I do not want my children to be indistinguishable from normal (whatever that is), Kim and I mostly want the same things for our children. We want our children to live comfortably in the world, to enjoy life. Kim wants that through recovering her children. I want it through transforming the world into a place where we all live in harmony.

Getting to this place of acceptance has been a journey. I wrote about it in my book, Swan Mothers: Discovering Our True Selves by Parenting Uniquely Magnificent Children.

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Ordinary Autism

I revel in the amazingness of human beings. I love the video clips and drawings and music that show that autism is really awesomism.

  • I cry each time I watch the YouTube video of Carly Fleischmann, typing “hurt” and “help” at age 11 when, until that moment, she had been presumed to be cognitively impaired and unaware of her surroundings. I love that, after refusing to type on demand for the television crew during an interview, she types “Is he cute?” when the reporter mentions that he has a son.
  • I love watching Clay Marzo surf and hearing his mother talk about how he is at home in the water, but struggles for air on land. Many of us could learn volumes from Clay’s authenticity and honesty.
  • I am blown away watching 13 year old Jake Barnett, a college sophomore and a math and science prodigy, who says autism is the key to his success. Knowing that a child that stopped speaking just before his second birthday is now an articulate, innovative researcher is amazing and inspirational. That Jake is writing a book to help the rest of us overcome our fear of math is another indicator of how cool he is.
  • I am in awe of Lyrica Mia, a non-verbal, autistic adult, who, together with her mother, Gayle Barley Lee, wrote , Awetizm:  A Hidden Key to Our Spiritual Magnificence. Lyrica has discovered/revealed that autistic beings have unique gifts and wisdom beyond this world and is leading the world is seeing these gifts.

The Spectrum

It is wonderful that the world is recognizing that autism is a spectrum. It is leading to the awareness that humanity is a spectrum: a distribution of energies, gifts, challenges, abilities, and goodness. Since I’ve noticed my children’s uniquely wonderful ways of being, I’ve realized that there is no such thing as normal or average. We are all Uniquely Magnificent.

My children don’t have skills or abilities that are television-worthy. Their needs are not particularly demanding. They simply, extraordinarily, amazingly, are the way they are.

There was a time when I would have asked: When will my child start typing or talking in full sentences? When will his gifts be revealed? When will he surf, play piano, write poetry, or solve complex equations? Why doesn’t he communicate with me telepathically(When will he say a few words? When will he learn to tie his shoes? When will he be able to eat comfortably?) I was envious of the Magnificent Autistic Beings that awe, inspire, and delight us.

The thing I finally understood is that there is no contest. There is no competition. In watching the video clips linked at the beginning of the post, I notice Magnificent Individuals fully and authentically being themselves. They do what they love. They are who they are. They derive their magnificence by tapping into and being themselves. And that, is available to me, and to us all.

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